pKU patient advocacy

Management and Leadership from Springfield College in Springfield,. She has led the organization since 2009. Michelle pernsteiner, pO Box 1872, eau Claire, WI 54702. We are the first national non-profit organization to unite adults, families, regional and statewide. Lex lives in New Braunfels, TX with his wife, Judy, where they are active in several local service organizations. Phone:, fax:, christine Brown is the Executive Director of the National. Children Living With Inherited Metabolic Disease (climb) climb is committed to fighting metabolic diseases through research, awareness, and support. . In addition to spending time with family and friends, she enjoys supporting her sons in hockey, scrapbooking, camping, fishing, walking and reading. Katrina lives in Tomahawk, WI with her husband, daughter.

Advocacy The Canadian PKU and Allied Disorders



pKU patient advocacy

PKU patient advocacy
pKU patient advocacy

She has extensive experience in management, Board development and strategic planning, advocacy, fundraising, grassroots organizing and public relations. Lex has over 20 years experience in the biotech industry where he held positions of increasing responsibility in target selection, drug discovery, preclinical development, and clinical development across a wide array of disease indications including cancer, infectious diseases, and CNS and holds 144 issued. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases. The National Institutes of Health (NIH) The NIH is the premiere medical research organization for the United States. The aim is to assist neurologists in the diagnosis and classification of Paraneoplastic symptoms by providing rigorous diagnostic criteria for the different conditions, to interchange information among the different centres, and to facilitate the pooling of patients for clinical trials. Society for Mucopolysaccharide Diseases, United Kingdom. He has served on grant review committees, as lead science liaison to the FDA for active INDs, as editor and reviewer for peer-reviewed scientific journals, and on organizing committees for international scientific meetings. The site provides an MPS IVA patient registry and links to other support and advocacy groups. Cowsert joined the npkua team as Director of Research Development in June 2018.



pKU patient advocacy

PKU -friendly businesses under one umbrella organization.
PKU, alliances mission is to improve the lives of individuals with.